We are testing a new tool that measures the impact of engaging people with lived and living experience and caregivers (PLLEX-C) in research. Participants will complete the tool while thinking aloud. Then, they will answer follow-up questions. This will help us refine the tool to ensure it is clear, relevant, and easy to use.
Eligibility Criteria
- You live in Canada
- You are 16 years of age or older
AND - You have been an advisor, collaborator, co-researcher on a study (not only a participants).
- You have personal or family lived/living experience any health condition.
OR - You work as a researcher on a patient-engaged health study in an academic setting.
What does the study involve?
- Number of contacts: Mix of 1-3 in-person and virtual visits
- Compensation offered? Yes
Investigator(s): Dr. Lisa Hawke
Full Study Title: Measuring the impacts of lived experience and family engagement on research: A pilot test of a psychometric measure
Contact Information:
E-mail: Engagement.Research@camh.ca
REB number: 2025-064
REB Approval Expiry Date: July 21, 2026
PLEASE NOTE:
- Research staff cannot give medical advice over the phone or via email.
- If you have specific questions regarding your health care, please contact your family physician.
- We regret that not everyone screened for a study will be eligible to participate
- For more information about other treatment options for mental illness or addiction offered by CAMH, visit www.camh.ca or call 416-535-8501.