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What to expect

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What to expect
Are you ready to take part in research at CAMH?  Have you found a study you'd like to participate in? Here's some information on what to expect. Click the questions to get to the answers below.  
 

What will happen when I contact the study team?

What questions should I ask to make sure the study is right for me?

What happens after I agree to participate?

What will happen if I decide to leave the study early?


What will happen when I contact the study team?

As a first step, you will be asked questions about your health, medical conditions, medications, age and other factors. Every study has its own guidelines about who is eligible to participate. These questions help the research team make sure you are right for the study, and the study is right for you. We call this “screening.”

If you have been screened for a study, but found out you are not eligible, please look at some of the ot​her options available: Find another study, join our participant list or look for studies at other research centres

If you decide after screening that you don’t want to participate, you can tell the research team. 


What questions should I ask to make sure the study is right for me?

As a research participant, you are a partner in the study. It is important for you to get all the information you need before you decide to take part in the study. Your research team should outline what is involved through a process called informed consent (see "What happens after I agree to participate?" below).

Here are some questions you can ask to make sure you understand what is involved: 

  • ​​What is the study about?

  • Will it help me, my relatives or other people with my condition?

  • Will taking part in the study affect my day-to-day life?

  • What will happen with my care if I do not take part in the study?

  • What are the risks or side effects?

  • I'm on a wait list to receive a treatment. Will participating in the study affect my place on the wait list?

  • How long will the study last?

  • How often will I need to come to the clinic?

  • What kind of support will I need from my family and friends?

  • Does the study provide compensation for my transportation or related costs?


What happens after I agree to participate?

You will be provided with a consent form that you need to understand and sign. It gives you written details about the study. Informed consent is the process of learning the key facts about a study before you agree to take part.

The consent form describes your rights as a study participant, and includes information about the study such as: the purpose, time involved, risks, required tests and important contact information.

Take as much time as you need to read the consent form and discuss it with a family member, spouse or partner, friend or family doctor. The researcher or study team must review the consent form with you and answer any questions.

If you sign the consent form, it means that you understand what is involved and that you have made a choice to take part in the study. You will receive a copy of the form.

See our Frequently Asked Questions to learn more about informed consent and your rights as a study participant​


What will happen if I decide to leave the study early?

It is fine to change your mind after you agree to participate. You may withdraw your consent at any time, for any reason. If you decide to leave the study, it’s important to tell the research team, as you may need to have some final tests or procedures. Leaving the study will not affect your current or future care at CAMH, your relationship with your healthcare team or your ability to participate in studies at CAMH in the future.

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